This past Friday Rayleigh and Mia had a checkup with the GI specialist in Dallas. As most of you know, all four of our girls came home from the NICU with g-tubes due to aspirating and issues with feeding from being premature. Well last year, Gracie and Tessa were doing great eating on their own and the doctor decided they would do fine without their g-tubes. He was right, they have done amazing and have grown well on their own. This past year Rayleigh has started eating better and was using her g-tube less and less. At our last checkup in November I just knew he was going to take hers out too but she hadn’t gained enough weight plus it was winter and he doesn’t typically take out tubes during the winter months because that’s when kids get sick the most. I’ll admit, I was so disappointed. I guess I had convinced myself she was ready and he’d take it out and when it didn’t happen I was a little sad. But, God is always teaching me lessons, and the doctor was right, she wasn’t 100% ready and I’m glad everything worked out the way it did because when she had her tonsils removed we were able to feed her and keep her hydrated with the tube. After her recovery, we stopped using the tube and let her eat and drink on her own. She’s done well and on Friday the doctor decided she was ready to fly solo. I’m so proud of Rayleigh. She has come so far in 3 years.
So now Mia is the only quint with a g-tube, and that’s okay. Yes, I wish she could eat enough to be healthy and thrive on her own but she’s not ready yet, so we will continue to be patient and get her the help she needs to be successful. She uses her tube twice a day. She is offered 3 meals and at least 2 snacks a day; sometimes she eats well and sometimes she doesn’t. Mia has come a long way and I’m so proud of her progress. She’s such a tough little girl.
Please continue to keep Mia in your prayers. The GI doctor put her back on medicine to try to help with her appetite and so far it seems to be helping.